National Rare Disease Day 2017

Reason to celebrate: February 28, 2017 is National Rare Disease Day.

Rare Disease Day

Rare Disease Day is an awareness hung on the last day of February to increase awareness about diseases that most people will certainly not understand of, along with to improve access to treatment. EURORDIS (The European Company for Rare Diseases) claims that therapy for several uncommon illness is insufficient, and some people's high quality of life is greatly prevented by disparity, merely due to the fact that folks have actually never ever heard of their illness, or do not recognize the condition and the person's demands. Since 2008, EURORDIS has been implemented social networks to aid sustain people with rare conditions and their households, as well as Co-Ordinating events for Rare Disease Day at an international degree.2010 provided balloon launches, marathons, public auctions and tree growing occasions to raise recognition, and every year people impacted by unusual diseases are encouraged to share images and their stories with the world.

Leap Year 2016: Why does February have an extra day every four years?
Leap Year 2016: Why does February have an extra day every four years?

February 29 crops up every four years, but what is a leap year, and why do we have them? A leap year, where an extra day is added to the end of February every four years, is down to the solar system and how it links to the Gregorian calendar. A ...

The Student Voice – Essay Competition 2015 Winners
The Student Voice – Essay Competition 2015 Winners

Extract from Mark's essay. Both Nicholas and Mark win a £100 cash prize from Findacure, and a free ticket to the organization's scientific conference on Rare Disease Day. Roberta also wins a free place at Findacure's scientific conference, a £200 cash ...

Blow bubbles for Batten's on Feb. 28
Blow bubbles for Batten's on Feb. 28

Rare Disease Day, which takes place annually on the last day of February, helps to raise awareness about rare diseases and their impact on parents' lives. Tillsonburg's Mike Gouin has been doing his part. For the past four years Gouin has been raising ...

COLUMN: Why Britain should stay in EU
COLUMN: Why Britain should stay in EU

Uttlesford's MEP Richard Howitt at the Wellcome Trust Sanger Institute, ahead of Rare Disease Day 2015. Archant. I'm sure everyone who reads this will each be looking forward to their own milestones in 2016, setting their new year's resolutions and ...

FDA Recognizes Rare Disease Day 2015
FDA Recognizes Rare Disease Day 2015

Rare Disease Day, which is commemorated internationally on the last day in February, was established to raise awareness about rare diseases, the challenges encountered by those affected, the importance of research to develop diagnostics and treatments, ...

Creating quilts for CORD in Cornwall
Creating quilts for CORD in Cornwall

This year's efforts in Cornwall come in advance of the Rare Disease Day 2016 Conference and Gala that's coming up Feb. 29-Mar. 1 in Ottawa. The two-day conference will be showcasing the talents, initiatives and successes of the various sectors of the ...

Student urges support of Rare Disease Day
Student urges support of Rare Disease Day

His hope is that the Austin area will join rare disease patients, caregivers and other health care advocates as they share their stories on Feb. 28, to observe Rare Disease Day on the south steps at the State Capitol from 1-3 p.m.. Karakourtis was ...

February 28, 2017 is also Chocolate Souffle Day, Tooth Fairy Day, Floral Design Day